Well, after all the rushing and stressing, the chair is no good, at least for Noah. It is adorable and convenient and would probably have been ideal....about four years ago. He is almost too big for it right now, and during the fitting he thrashed so bad I thought the thing was going to fall to pieces. I think the rep thought that too! The frustrating fact of life is that, as he gets bigger, our options for good equipment dwindle dramatically. They just don't make awesome wheelchairs for big kids. I was on the verge of tears.
In the midst of this pity-party, I had to stop and realize exactly what I was complaining about...
My amazing boy, who wasn't supposed to survive birth, much less make it through infancy, is almost eleven years old!
Yes, this means that he is bigger, heavier, and more challenging to move and position, and I wonder how these things will be accomplished as he gets older. As he gets stronger, he hurts himself (and us) more often, and feel like there is very little information or support for this issue.
But, my God "knows the plans He has for Noah, to prosper and not to harm him, to give him hope and a future!" Jeremiah 29:11
And boy, is Noah prospering! He travels:
He explores:
He plays:
And even rides!
Lord, help me to remember, on the days that being Noah's mom is especially hard, that it is a blessing and a privilege to do so, and to be thankful for every extra day I have him on this earth!